Aged Care: Palliative Care

• Pallative care books

• Advance Care Planning in End of Life Care eBook - Advance Care Planning (ACP) is an essential part of end of life care in the UK and most developed countries. It enables more people to live well and die as they would choose, and has significant implications for the individual person, their family and carers, and our wider society. In the context of an ageing population and increasing possibilities for medical interventions, ACP is a particularly important aspect of quality care.Expanded and fully updated throughout, this new edition gives a comprehensive overview of ACP and explores a wide range of issues and practicalities in providing end of life care. Written by experts from around the world, the book takes a comprehensive look at the subject by exploring the wide range of issues and practicalities in providing ACP; framing the purpose, process, and outcomes of these plans; and providing an important update on national and international research, policy and practice.
• Ethics in Palliative Care : A Complete Guide No specialty faces more diverse and challenging ethical dilemmas than palliative medicine. What is the best way to plan ahead for the end of life? How should physicians respond when patients refuse treatments likely to be beneficial, or demand treatments not likely to be? Who makes medical decisions for patients who are too ill to decide for themselves? Do patients have the "right to die" (and, if so, what exactly does that mean)?In this volume noted palliative care physician and bioethicist Robert C. Macauley addresses a broad range of issues from historical, legal, clinical, and ethical perspectives. Clinically nuanced and philosophically rigorous, Ethics in Palliative Care analyzes hot-button subjects like physician assisted dying and euthanasia, as well as often overlooked topics such as pediatric palliative care, organ donation, palliative care research, and moral distress. Drawing on real cases yet written in non-technical language, this complete guide will appeal to both medical professionals and lay readers.
• Finishing Our Story : Preparing for the End of Life eBook - Death is the destiny we all share, and this will not change. Yet the way we die, which had remained the same for many generations, has changed drastically in a relatively short time for those in developed countries with access to healthcare. For generations, if people were lucky enough to reach old age, not having died in infancy or childhood, in childbirth, in war, or by accident, they would take to bed, surrounded by loved ones who cared for them, and fade into death. Most likely, they would have seen their parents and grandparents die the same way, and so this manner of dying would be familiar: it was part of the natural cycle of life.Now less than 25 per cent of Americans die at home, having reached much older ages than people would have dreamed of in past generations, often after surviving many illnesses and even diseases that would have been terminal for their grandparents. We are fortunate to live (and die) today, supported by myriad scientific, medical, and technological advancements, however we also face new problems as a result of the new way in which we die. We can no longer anticipate a peaceful waning at home with family. We know our lives will likely end in hospitals likely after we have endured grueling treatments to prolong life. We have to decide what decisions we want our loved ones, or care-givers, to make when we cannot choose for ourselves. We have to think about whether in any circumstances we would seek physician-assisted death. We know we face other questions as well, but we may not even know where to start.In the face of these decisions, we can feel daunted and afraid. The best remedy is information and planning.
• Hospice palliative home care and bereavement support : nursing interventions and supportive care eBook - This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike. The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed by the authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement.
• Palliative care nursing : a guide to practice eBook - Written by experienced authorities from around the world giving a wider international perspective on palliative nursing, this substantially expanded new edition has been specifically adapted to reflect working practices within the NHS. All nurses especially those that are new to palliative care, and those working in other areas of health where palliative skills are required, will find this essential reading.
• Perspectives on palliative and end-of-life care : disease, social and cultural context eBook - Individuals and families face challenges at the end of life that can vary significantly depending on social and cultural contexts, yet more than ever is now known about the needs that cut across the great diversity of experiences in the face of dying and death. A number of behavioural interventions and clinical approaches to addressing these needs have been developed and are available to help providers care for clients and assist them in achieving their goals. Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Contexts explores how these interventions can be used to address a range of issues across social and cultural contexts for those in need of end of life care. With perspectives from experienced clinicians, providers, and caregivers from around the world, the book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field and explores interventions for people as diverse as HIV caregivers in Africa and individuals dying with dementia.
• Psychosocial issues in palliative care : a community based approach for life limiting illness eBook - Caring for terminally ill patients and their families is challenging. Patients with life limiting illness require the skills of many professionals but also the support of their community. While most clinicians are comfortable in assessing a broad range of physical problems, it is often the psychosocial issues that prove the most complex. These issues range from psychosocial assessment to the treatment and care of patients with life limiting illnesses. Evaluatingemotional, social and spiritual needs, in particular, requires excellent teamwork.This fully-updated and expanded new edition takes a comprehensive look at current practice and provision of psychosocial support as applied to a range of palliative care patients. A number of important areas are covered including community approaches of psychosocial care, neonatal palliative care, the provision of psychosocial care to families, the role of volunteers in supporting palliative care professionals, and the needs of the frail elderly, marginalised patients, and those with dementia.Including multiple case study examples, this highly practical text examines current literature and evidence to demonstrate the best research-based practice in psychosocial care. It is an essential resource for professionals working within hospitals and communities in the fields of medicine, nursing, social work, chaplaincy, counselling, primary care, and mental health.

• Death, Dying & Bereavement
• End of life
• Louis Theroux's L.A. Stories: Edge of Life

  Louis Theroux, English documentary filmmaker and broadcaster, heads to the award-winning Cedars Sinai Medical Center in Los Angeles to learn more about the American way of death. A huge amount of money is spent on treatment during the last year of life and Louis follows the stories of three patients as they grapple with their seemingly terminal conditions. Should they accept the inevitable and try to pass away in as dignified way as possible? Or should they go down fighting, trying every last treatment no matter how unlikely it is to succeed or how bad the side effects may be? Here it's often the latter because the U.S. health care system continues to pay for treatments that patients want.
• Pain management in the elderly - Clickview Video

  This video discusses implications of pain and incorporate appropriate actions to assess and deal with pain into patient care.
• Palliative care nursing caring for yourself Streaming video - Delivering palliative care can be both hugely rewarding and, at times, very stressful. It is likely that all health workers will be involved in caring for a dying person at some time. Nurses need to be able to manage their own stress to deliver a good standard of care to their patients. This programme provides an introduction to to palliative care stress management. We define stress, and discuss the differences between personal and work-related stress, and discuss the signs of stress-related burnout.
• Spirituality in palliative care Streaming video - For many people, being confronted with a terminal illness brings them face to face with their spirituality, perhaps for the first time. Reflection on impending death and on spirituality may enable clients to successfully work through the dying process.

• Nursing and Allied Health This link opens in a new window Research full-text titles cited in CINAHL and other resources to support specialized care, treatment, and patient management. Login with your TasTAFE username and password.
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• Advanced Care Planning - Commonwealth Advance care planning is a series of steps you can take to help you plan for your future health care. Start the conversation now.
• Advanced Care Planning - Tasmanian Health Advance Care Planning is a process of discussion between a patient, the patient's family, and health care professionals about the goals and desired direction of the patient's end-of-life care. It is particularly important because the patient may later lose the capacity to participate in discussions when difficult decisions need to be made as the end of their life nears.
• Australian Centre for Grief and Bereavement The Australian Centre for Grief and Bereavement is a not for profit organisation established to provide a range of education, counselling, research and clinical services for those working in and affected by experiences of grief and bereavement.
• The Australian Pain Society
• CareSearch - Palliative Care Knowledge Network Bringing relevant evidence and quality information to palliative care
• Hospice Volunteers Hospice Volunteers is a non-faith based, not-for-profit organisation providing volunteer support to people approaching end of life. The support we offer is both emotional and practical and takes into account the needs of family members and care-givers also.
• The National Palliative Care Strategy 2018 - Commonwealth The strategy outlines our plan to make sure you get the highest level of palliative care. We developed this strategy with help from everyone who provides palliative care services.
• Palliative Care - Tasmanian Health Palliative care is symptom management, care and support for people living with a life-limiting illness. A life-limiting illness is an illness without a cure. Care focuses on the comfort and quality of life for the patient, family and loved ones. Palliative care is appropriate for any person of any age at any stage of a life-limiting illness. Palliative care supports people through the physical and psychological aspects of end-of-life care.
• Palliative Care Australia Palliative Care Australia is the peak national organisation representing the interests and aspirations of all who share the ideal of quality care at the end of life. Specialist palliative care providers have specialist knowledge, skills and expertise in the care of patients, their families, carers and communities, who are living with and dying from a terminal condition. Quality care at the end of life is realised when strong networks exist between specialist palliative care providers, primary generalist, primary specialist and support care providers and the community – working together to meet the needs of all people.
• Palliative care resources - Commonwealth A list of resources — including videos and other publications — about palliative care.
• Palliative Care Tasmania
• Palliative Care Victoria - Easy English Resources Welcome to the Palliative Care Victoria resource library! The resource library contains a selection of useful resources about palliative care. You may search the library for information and download documents of interest. You may search in 23 community language
• The PMG Kit for Aged Care

  An implementation kit to accompany The Australian Pain Society’s Pain in Residential Aged Care Facilities: Management Strategies
• Residential Aged Care Palliative Approach Toolkit The PA Toolkit project aims to strengthen the capacity of residential aged care staff to deliver high quality, evidence-based care for residents by: Providing training on how to use the PA Toolkit in the day-to-day provision of palliative care. Developing new clinical, educational and management resources for inclusion in, and to support the implementation of, the PA Toolkit.

• Youtube Channel - Social Care Institute for Excellence (SCIE) UK